Creating Connections. Confronting Challenges. Catalyzing Change.
November 9th · 9:30am ET / 3:30pm CET
Cesar Garrido President The World Federation of Hemophilia
Dr. Yuri Zhulyov President Russian Hemophilia Society
Amanda Bok CEO European Haemophilia Consortium (EHC)
Chris Bombardier Executive Director Save One Life
Durhane Wong-Rieger CEO and President Canadian Organization for Rare Disorders
Tirsa Carcamo Bonilla Project Lead Honduran Society of Hemophilia
The global hemophilia ecosystem is rapidly evolving. With an explosion in innovation, there are more sophisticated treatments, diagnostics, digital tools, physician resources and educational initiatives than ever before. At the same time, achieving sustainable access to these innovations is a significant challenge that’s exacerbated by an array of geographic and socio-economic factors.
The challenges of today require new thinking on how to face them so that people with hemophilia can pursue living their lives without limitations. With this, one thing is clear – rare blood disorders stakeholders must address these evolving challenges together to help advance higher standards of care for people with hemophilia across the globe.
That’s why Reuters Events, in partnership with Sanofi Genzyme, is proud to bring together leaders of the global hemophilia and rare disease advocacy communities, hematologists, policymakers, patients, payers and regulators to collectively explore sustainable solutions for accessing treatment, care and support.
Cesar Garrido President The World Federation of Hemophilia
Dr. Yuri Zhulyov President Russian Hemophilia Society
Amanda Bok CEO European Haemophilia Consortium (EHC)
Chris Bombardier Executive Director Save One Life
Durhane Wong-Rieger CEO and President Canadian Organization for Rare Disorders and Chair Rare Diseases International
Tirsa Carcamo Bonilla Project Lead Honduran Society of Hemophilia
Agnes Kisakye Executive Secretary Haemophilia Foundation of Uganda
Dejan Petrović President Serbian Hemophilia Society
The half-day, virtual event will cover these areas and more:
Conference Chairperson: Scott Williams, Head, Global Public Affairs, Rare Diseases and Rare Blood Disorders, Sanofi Genzyme
Welcome Address
Vanina Laurent-Ledru Vice-President and Head of Global Public Affairs Sanofi Genzyme
09:30am – 10:00am
Keynote fireside chat: Hemophilia patients need higher standards of care now
Cesar Garrido President The World Federation of Hemophilia
Chris Bombardier Executive Director Save One Life
10:00am – 10:45am
Panel: Driving long-term sustainable innovation and access; overcoming external disrupters and the role of patient advocacy in creating change
Moderator: Anne-Sophie Chalandon Rare Diseases Policy Head Sanofi Genzyme and Co-Chair EFPIA OMP Working Group
Durhane Wong-Rieger CEO and President Canadian Organization for Rare Disorders and Chair Rare Diseases International
Amanda Bok CEO European Haemophilia Consortium (EHC)
10:45am – 11:00am
Case study: Addressing barriers to access in Russia
Dr. Yuri Zhulyov President Russian Hemophilia Society
11:00am – 12:00pm
Panel: Creating equal access opportunity to innovation and care across every hemophilia patient population
Moderator: Cecile Le Camus Head of Global Medical Affairs Hemophilia Sanofi Genzyme
Tirsa Carcamo Bonilla Project Lead Honduran Society of Hemophilia
Dejan Petrović President Serbian Hemophilia Society
Agnes Kisakye Executive Secretary Haemophilia Foundation of Uganda
Get in touch with the Reuters Events team